Arthritis Australia https://arthritisaustralia.com.au/ Arthritis and Musculoskeletal Care Tue, 01 Apr 2025 05:55:10 +0000 en-AU hourly 1 https://wordpress.org/?v=6.7.2 National Research Program information session for researchers https://arthritisaustralia.com.au/national-research-program-information-session-for-researchers/ Thu, 06 Mar 2025 02:28:19 +0000 https://arthritisaustralia.com.au/?p=17963 We are committed to improving the lives of Australians living with arthritis and musculoskeletal conditions through impactful, relevant research. We’re excited to announce our new activities aimed at embedding and supporting consumer engagement in research in our research activities and partnerships.   In 2024, we partnered with Research Australia to conduct a review of best practice...

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We are committed to improving the lives of Australians living with arthritis and musculoskeletal conditions through impactful, relevant research. We’re excited to announce our new activities aimed at embedding and supporting consumer engagement in research in our research activities and partnerships.  

In 2024, we partnered with Research Australia to conduct a review of best practice in consumer research engagement, and utilise insights from researchers and consumers into how Arthritis Australia can support and foster increased consumer involvement at all stages of research. We are committed to investing additional resources into our Arthritis and MSK Research Champions program matching consumers with research projects, and providing funding to support researchers to involve consumers in their projects. 

In the lead up to the National Research Program grant rounds, we will be hosting a webinar with the Australian Rheumatology Association to help prepare applicants, with information on: 

  • A new Expression of Interest process to streamline grant applications,  
  • How you can apply for funding for consumer involvement in your project, and how we can help you find consumers 
  • Our new resource on best practice consumer research engagement 
  • A Q&A session on this year’s grant rounds, scholarships and fellowships 

Join us for an online information session to discuss the 2026 grant rounds and how these changes may impact researchers on:

Thursday, 10 April 2pm AEST.  

Speakers:

Dr. David Liew,  Medical Director, Arthritis Australia
Dr. Mihir Wechalekar, Chair – Grants Assessment Committee, Arthritis Australia
Professor Catherine Hill, Chair, ARA Research Committee
Nadia Levin, CEO and Managing Director, Research Australia 

The session will be recorded so it can be viewed on demand on our website. 

Applications for the 2026 national research program (including the Expression of Interest process) will open on Friday 11 April, when application guidelines and information will be published on the Arthritis Australia website.  

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New Website Empowers Australians with Osteoarthritis https://arthritisaustralia.com.au/new-website-empowers-australians-with-osteoarthritis/ Tue, 25 Feb 2025 10:51:07 +0000 https://arthritisaustralia.com.au/?p=17936 Press Release [Sydney, Australia] Australians living with osteoarthritis now have a powerful new resource at their fingertips with the launch of MyOA/ MyJointPain (https://myoa.org.au/), a dedicated online platform designed to provide support, education, and tools for better management of the condition. Osteoarthritis affects more than 2.2 million Australians, impacting mobility, independence, and quality of life....

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Press Release [Sydney, Australia]

Australians living with osteoarthritis now have a powerful new resource at their fingertips with the launch of MyOA/ MyJointPain (https://myoa.org.au/), a dedicated online platform designed to provide support, education, and tools for better management of the condition.

Osteoarthritis affects more than 2.2 million Australians, impacting mobility, independence, and quality of life. MyOA aims to bridge the gap in accessible, evidence-based information by offering a user-friendly hub where individuals can find expert advice, self-management strategies, and community support.

Professor David Hunter at the University of Sydney highlights the importance of MyOA in improving osteoarthritis care: “Too many Australians struggle with osteoarthritis without adequate guidance or support. MyOA is designed to empower individuals with the knowledge and tools they need to take control of their health.”

Jonathan Smithers, CEO of Arthritis Australia said: “Osteoarthritis is the most common form of arthritis in Australia, yet many Australians face barriers to accessing the care and information they need. MyOA/My Joint Pain helps to bridge the gap by providing access to reliable, expert advice and resources to help them understand and make informed decisions about their care.

Key features of MyOA/MyJointPain include:

Expert-Backed Resources – Reliable, up-to-date information on osteoarthritis treatment
and management.
Personalised Management Tools – Track symptoms, set health goals, and access tailored
self-care strategies.
Community Support – A space for individuals to connect, share experiences, and find
encouragement.
Latest Research Updates – Stay informed about advancements in osteoarthritis treatment
and care.

The launch of MyOA represents a major step forward in making osteoarthritis support more accessible. The platform is free to use and available to all Australians seeking to improve their osteoarthritis management and quality of life. For more information, visit https://myoa.org.au/

 

About Arthritis Australia: 
Arthritis Australia is the peak national body for arthritis, advocating on behalf of over 4 million Australians living with arthritis, and working with many other arthritis organisations to deliver information and support to people living with more than 100 types of arthritis and musculoskeletal conditions. We are a leading non-government funder of arthritis research in Australia and advocate for policies, programs and funding initiatives that will improve the health and wellbeing of people
living with arthritis. For more information visit: arthritisaustralia.com.au

Issued by Cube on behalf of Arthritis Australia. For more information, please contact: Anne-Marie Sparrow on 0417 421 560.

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Arthritis Australia | 2024 year in review https://arthritisaustralia.com.au/arthritis-australia-2024-year-in-review/ Thu, 06 Feb 2025 02:55:59 +0000 https://arthritisaustralia.com.au/?p=17712 In 2024, Arthritis Australia made significant strides in advocating for better care for the 7+ million Australians living with arthritis and musculoskeletal conditions. Parliamentary Summit on Better Care for Arthritis and Musculoskeletal Conditions A highlight was our inaugural Parliamentary Summit on Better Care, held on August 22, which brought together over 90 consumers, clinicians, researchers,...

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In 2024, Arthritis Australia made significant strides in advocating for better care for the 7+ million Australians living with arthritis and musculoskeletal conditions.

Parliamentary Summit on Better Care for Arthritis and Musculoskeletal Conditions

A highlight was our inaugural Parliamentary Summit on Better Care, held on August 22, which brought together over 90 consumers, clinicians, researchers, policymakers and industry representatives to address the pressing challenges faced by people affected by these conditions.

The summit focused on four key areas of consideration:
Workforce
Innovative models of care
Addressing out-of-pocket costs
Research investment

We were honoured to have key speakers, including Hon Assistant Health Minister Ged Kearney, Hon Senator Anne Ruston, and Senator Louise Pratt. The event was expertly facilitated by journalist Karen Middleton, who guided discussions among a panel of esteemed experts and individuals with lived experience.

Expert and lived experience contributors included Prof David Hunter, Prof Rachelle Buchbinder, Ms Jo Root, and Associate Professor Jane Desborough. Their insights were invaluable in exploring ways to improve patient outcomes and enhance quality of life while also generating savings for the health system.
Following the summit, Arthritis Australia and over 40 leading health stakeholders including over 20 peak bodies issued a formal communique calling for urgent action to provide more affordable evidence-based care.

Arthritis Australia has used the input from the summit to develop our 2025 election platform and budget submission. As we reflect on this pivotal event, we remain committed to implementing critical reforms for Australians living with arthritis and musculoskeletal conditions. The momentum generated by the summit has strengthened our resolve to advocate for better care and support for those affected.

Looking ahead, we will continue our efforts to drive meaningful change in the healthcare landscape, ensuring that the voices of those living with arthritis are heard and prioritised.

New Resources Launched in 2024

In our ongoing commitment to support Australians living with arthritis, we’re excited to highlight two significant resources launched in 2024

The Gout Hub
We introduced The Gout Hub, a comprehensive online resource dedicated to gout. This hub offers valuable information on the causes, symptoms, and management of gout, helping patients understand how to live well and prevent joint damage.
The Gout Hub provides crucial insights into gout flare symptoms and the role of diet, empowering individuals by, sharing stories of people living with gout to better manage their condition.
With downloadable resources including the fact sheets, the gout booklet and a video resource library, the gout hub has everything you need to understand and manage your gout effectively.

gout-foot-urate

Moving with Arthritis
We also launched Moving with Arthritis, a dedicated website designed to encourage and support physical activity among people living with arthritis. Moving with arthritis acknowledges the challenges of staying active with arthritis and aims to help individuals enhance their mobility and overall well-being.
Moving with Arthritis includes a variety of resources, such as myth-busting information about exercise and arthritis, a quiz to help users find suitable programs, and a directory of arthritis-friendly exercise options. It also offers guidance on finding professional support and classes in your area for those seeking personalised information.
These new resources reflect our ongoing dedication to providing comprehensive, accessible information and support for the millions of Australians living with arthritis. We encourage everyone affected by arthritis to explore these platforms and take advantage of the wealth of information they offer.

That's a Wrap 2024: Packaging Accessibility in Focus

The results are in for our annual “That’s a Wrap” campaign, and 2024 has seen unprecedented engagement from our community. With record-breaking participation in nominations and votes, we’ve gained valuable insights into the packaging challenges faced by Australians living with arthritis and musculoskeletal conditions.

Worst Offenders of 2024
5. Jars: Both plastic and glass jars continue to cause discomfort.
4. Cleaning Product Packaging: Spray bottles and squeeze-and-turn caps present significant hurdles.
3. Ring Pull Cans: Opening these remains painful and potentially dangerous.
2. Child-Resistant Medication Containers: The irony of inaccessible arthritis medication packaging isn’t lost on our community.
1. Meat Packaging: Vacuum-sealed packets and trays without pull tabs top our list, often forcing unsafe opening methods.

A Ray of Hope: Best Packaging of 2024
On a positive note, the humble egg carton claimed the top spot for accessibility. Other commendable mentions included screw-top wine bottles, easy-tear wrappers, and wide flip-top toothpaste lids.

Looking Ahead
This campaign continues to underscore the critical need for accessible packaging design. We’re committed to reaching out to the companies behind nominated products, sharing your experiences, and advocating for positive change.

Speaking up for arthritis in the halls of Parliament

In 2024 Arthritis Australia continued to build momentum in our engagement with government and parliament.

Highlights include:
Meetings with Minister Butler, Shadow Minister Ruston and state and territory governments on reforms to elective surgery and wait times, alongside the Australian Orthopaedic Association and other consumer groups
• Parliamentary Friends of Arthritis launch of new projections on the impact of arthritis to 2040, the generations that will be hit hardest and the potential severe economic consequences.
• Motions in parliament recognising the impacts of arthritis and fibromyalgia from multiple MPs and Senators, including Senator Louise Pratt and Senator Tammy Tyrrell
• Ongoing meetings with MPs and Senators representing communities across Australia.

Lowering the cost of medicines and vaccines for consumers

In a significant development for healthcare affordability, 2024 saw the full rollout of 60-day scripts for Australians, a change that has benefited those living with arthritis and musculoskeletal conditions. 

Arthritis Australia CEO Jonathan Smithers and Consumer Advisory Panel member Sharyce Helyar stood alongside Health Minister Mark Butler at the press conference announcing the changes, following strong advocacy from Consumer Health Forum, Arthritis Australia and other consumer groups. This new policy allows eligible patients to receive a two-month supply of certain medications with a single prescription, instead of the previous one-month limit.

Key benefits of 60-day scripts include:
– Lower out-of-pocket costs: With fewer dispensing fees, eligible patients are experiencing reduced overall medication expenses.
– Reduced pharmacy visits:  Eligible patients now only need to visit the pharmacy every two months for refills, saving time and reducing travel burdens.
– Decreased GP appointments: Fewer visits are required solely for prescription renewals, easing the burden on both patients and the healthcare system.

The rate of Pharmaceutical Benefit Scheme consumer co-payments has also been frozen in further measures to manage the out of pocket cost of medicines.

In other positive news, Shingrix® was added to the National Immunisation Schedule so that it can be accessed for free by eligible individuals aged 18 years and over who are at increased risk of shingles due to underlying conditions or immunosuppressive treatments. Previously consumers had to pay hundreds of dollars out of pocket. 

We at Arthritis Australia applaud these initiatives and will continue to advocate for policies that make healthcare more affordable for Australians living with arthritis and musculoskeletal conditions.

National research program - recipients

We welcomed our latest cohort of brilliant researchers who will be driving innovation in arthritis and musculoskeletal research. These dedicated individuals are set to make significant strides in improving the lives of millions of Australians living with arthritis. 

Our National Research Program continues to support ground-breaking projects that promise to enhance care, management, and quality of life for those affected by arthritis. We’re excited to see the outcomes of their hard work and dedication.

To our 2025 grant recipients: Your commitment to advancing arthritis research is truly inspiring. We can’t wait to see how your projects will shape the future of arthritis care and treatment.

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Empowering Healthcare Professionals through ATLAS

In our ongoing commitment to improve arthritis care, we’re thrilled to highlight a major milestone from 2024 – the launch of ATLAS (Arthritis Training, Learning and Up-Skilling for health professionals) eLearning program. This innovative online learning platform marks a significant step forward in arthritis education for healthcare professionals, developed by a consortium including the University of Sydney, Arthritis and Osteoporosis Western Australia, the University of Melbourne, Curtin University and the Australian Rheumatology Association.

ATLAS_PA_Still_V1_1200x1200

The ATLAS eLearning program empowers you with the evidence-based tools and resources you need to provide best-practice arthritis care.

ATLAS features:
– Evidence-based and peer-reviewed training content
– A multi-disciplinary, holistic perspective
– Modular design with customisable learning pathways
– Practical, actionable guidance
– An accessible online platform 

Arthritis is one of the most common causes of disability in Australia. In 2019, the National Strategic Action Plan for Arthritis identified a need for consistent delivery of high value arthritis care across disciplines—ATLAS was one of the key implementation strategies. A team of cross-discipline arthritis experts came together to develop the program, and it launched in 2024.

Arthritis projections make national news

Our research collaboration with Monash University projecting the impact of arthritis in Australia to 2040 made national news, following a publication in the Lancet Rheumatology. According to the study, an estimated 5.39 million Australians will be living with arthritis – that’s a 31% increase from 2025.
Breakdown of projections for 2040:
• Osteoarthritis: 3.11 million
• Rheumatoid arthritis: 749,000
• Juvenile idiopathic arthritis: 8,500 children and adolescents

The budget impact is significant too. Annual health system expenditure for osteoarthritis and rheumatoid arthritis is expected to exceed AU$11.92 billion by 2040.

This research study by Professor Ilana Ackerman, Alexandra Gorelik, Danielle Berkovic and Professor Rachelle Buchbinder, highlights the urgent need for well-resourced health services that can capably deliver timely, high-value care to a growing number of people with arthritis.

Arthritis Australia is calling on the federal government to:
– Fund affordable access to allied health
– Provide $11m in funding to support people with OA to improve their health and avoid surgery
– Establish a Medical Research Future Fund Arthritis and MSK Mission.

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Australians with our most misunderstood arthritis – GOUT- receive resources in time for holidays! https://arthritisaustralia.com.au/pr-new-gout-resources/ Wed, 18 Dec 2024 02:38:15 +0000 https://arthritisaustralia.com.au/?p=17945 One in 15 Australians are affected by gout – also referred to as ‘crystal arthritis’ Gout attacks can be triggered by foods and alcohol abundant on the festive buffet Gout sufferers face stigma due to lack of understanding that the cause is mostly genetic New resource hub tackles myths and mismanagement to reduce disease burden.[Sydney,...

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  • One in 15 Australians are affected by gout – also referred to as ‘crystal arthritis’
  • Gout attacks can be triggered by foods and alcohol abundant on the festive buffet
  • Gout sufferers face stigma due to lack of understanding that the cause is mostly genetic
  • New resource hub tackles myths and mismanagement to reduce disease burden.


    [Sydney, Australia] – Arthritis Australia is launching a first-of-its-kind comprehensive information resource hub for Australians living with Gout – our most common, but misunderstood form of inflammatory arthritis.

    Gout, also known as ‘crystal arthritis’ or ‘gouty arthritis’, is a chronic inflammatory joint condition affecting approximately 1 in 15 Australians.1 While commonly misunderstood as a condition linked solely to overindulgence in rich foods and alcohol, gout is primarily driven by genetic factors.

    Unfortunately, many traditional Christmas foods – including rich meats, seafood, and alcohol – can trigger gout flares, making the festive season a particularly stressful and challenging time for those living with the condition.

    Funded by the Australian Government, and developed together with the Quality Use of Medicines Alliance, the new gout resource hub is designed to improve treatment and management outcomes and challenge widespread misconceptions and myths about this often-misunderstood condition. It also addresses the increasing prevalence of gout and its associated health and economic burden.

    While it can affect anyone, gout is typically more prevalent in men and older adults.1 Women are more prone to developing the condition following menopause.1 Certain ethnic groups are also disproportionately affected.1

    Despite its prevalence, gout remains significantly undertreated, leading to unnecessary pain, disability, and impaired quality of life.1,2 Gout-related hospitalisations, readmissions, and emergency department visits also place a substantial economic burden on Australia’s healthcare system.1,2,3 An estimated $230.8 million was spent on the treatment and management of gout in 2020-21.2,3,4

    “Christmas can be particularly challenging for people with gout,” said Jonathan Smithers, Chief Executive Officer, Arthritis Australia. “Misconceptions about the condition and its triggers often lead to anxiety around festive meals. This new resource hub provides practical advice to help individuals enjoy the season without compromising their health.”

    Gout in Australia: Myths vs. Reality
    Recent research underscores the critical need to dispel misconceptions about gout, which is often stigmatised as a self-inflicted condition. Key findings include:
    71% of respondents believed alcohol was a primary cause, while 74% linked it to rich foods like red meat and seafood.
    • Only 48% were aware of the genetic and hereditary factors contributing to gout.
    • While 56% recognised gout’s potential to cause joint damage, fewer understood its links to kidney impairment (49%) and cardiovascular disease (24%).

    “Gout is not just about diet and lifestyle. It’s a chronic condition that can be well managed by monitoring uric acid levels and taking urate-lowering medicines. However, many people with gout aren’t currently being treated properly, and this can lead to debilitating joint damage as well as higher risk of kidney and cardiovascular disease,” said Dr David Liew, Medical Director of Arthritis Australia.

    “For many, misconceptions and stigma lead to delayed treatment or a reluctance to take medicine. This resource is designed to empower individuals with gout and help support better self-management and shared decision making, and improve long-term health outcomes,” Dr Liew added.

    Empowering Patients and Communities
    The new resource hub aims to address these challenges head-on by offering:
    • Educational materials to improve understanding of gout as a chronic condition.
    • Engaging videos providing expert guidance and advice from leading health professionals, along with personal stories from people living with gout, designed to empower other consumers to seek advice and treatment for their condition.

    “By equipping Australians with the knowledge to manage their gout effectively, we hope to take the stress out of Christmas and beyond – and help empower individuals to enjoy the holidays while also prioritising their health,” added Mr Smithers.

    Visit the resource hub here: https://arthritisaustralia.com.au/types-of-arthritis/gout/

    About Arthritis Australia
    Arthritis Australia is the peak national body for arthritis, advocating on behalf of over 4 million Australians living with arthritis, and working with many other arthritis organisations to deliver information and support to people living with more than 100 types of arthritis and musculoskeletal conditions. We are a leading non-government funder of arthritis research in Australia and advocate for policies, programs and funding initiatives that will improve the health and wellbeing of people living with arthritis. For more information visit: arthritisaustralia.com.au

    About the Research
    The research was conducted by Arthritis Australia and the Quality Use of Medicines Alliance from June to September 2024 – via an online survey of over 100 people living with gout or caring for someone living with gout.


    Issued by Cube on behalf of Arthritis Australia. For more information, please contact: Anne-Marie Sparrow on 0417 421 560.
    References:1. Pathmanathan K, Robinson PC, Hill CL,Keen HI. The prevalence of gout and hyperuricaemia in Australia: An updated systematic review. Sem Arthr Rheum 2021: 51(1); 121–128. https://doi.org/10.1016/j.semarthrit.2020.12.0012. Australian Institute of Health and Welfare [Internet]. 2023 [cited 2024 Jan 9]. Chronic musculoskeletal conditions: Gout. Available from: https://www.aihw.gov.au/reports/chronicmusculoskeletal-conditions/gout3. Kelty E, Nossent J, Raymond W, Robinson P, Hill C, Inderjeeth C, et al. Pos1147 Costs andFactors Affecting Health Service Utilisation in Patients with Gout: A Longitudinal, Population Level Linked Data Study in Western Australia. Ann Rheum Dis. 2021 Jun;80(Suppl 1):852–34. Lopez D, Dwivedi G, Nossent J, Preen DB, Murray K, Raymond W, et al. Risk of Major AdverseCardiovascular Event Following Incident Hospitalization for Acute Gout: A Western AustralianPopulation-Level Linked Data Study. ACR Open Rheumatol. 2023;5(6):298–304.

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Arthritis and musculoskeletal conditions affect 7 million Australians https://arthritisaustralia.com.au/7millionvoices/ Tue, 17 Dec 2024 00:22:34 +0000 https://arthritisaustralia.com.au/?p=17477 Click here to email your MP today 7 million voices | 7 million stories Arthritis and musculoskeletal conditions affect almost 1 in 3 Australians One in three, which is more than 7 million Australians of all ages, are living with arthritis and musculoskeletal (MSK) conditions. The next federal election could be called at any time,...

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7 million voices | 7 million stories

Arthritis and musculoskeletal conditions affect almost 1 in 3 Australians

One in three, which is more than 7 million Australians of all ages, are living with arthritis and musculoskeletal (MSK) conditions.
The next federal election could be called at any time, and we need our arthritis and MSK community to come off the bench and make our voices heard if we want to see positive change.

The reality for many with arthritis is stark:
Not being able to work: Australians living with arthritis often find themselves retiring early. The physical demands of work can become overwhelming, forcing many to leave their careers to manage their health effectively.
High out of pocket health costs and lack of access to care and support.
• Life-altering decisions: Australians living with arthritis frequently face difficult choices at an early age, such as:
– Deciding whether to have children, knowing that pregnancy can exacerbate symptoms.
– Abandoning dream careers due to physical limitations or pain.
– Limiting social activities, such as enjoying a night out with friends or a walk on the beach.

Email your local MP today and make your voice heard. 

You can choose to personalise your message or simply send our election platform email.

The truth is that millions of Australians of all ages wake up with arthritis and MSK conditions every day.
For those who don’t experience it firsthand, it’s crucial to understand the detrimental impact this condition has on everyday life.
We all know someone who has arthritis or MSK or cares for someone affected by it.

Telling your story in your own words is a powerful way to help MPs understand the personal impact of arthritis and the support that is needed.

2024-fast-facts

Our asks for Australians living with arthritis and musculoskeletal conditions:

1. Invest in game-changing arthritis and musculoskeletal research to transform lives and generate health system savings

For every Australian living with arthritis and MSK, the government spent just $6 on research through the NHMRC in 2023. This compares to $108 per person living with dementia, and $72 per person with a cardiovascular condition. 

Boosting arthritis and musculoskeletal research could transform quality of life for people of all ages living with pain and disability. By establishing a Medical Research Future Fund Arthritis and Musculoskeletal Mission we could save the health system billions and give the hope of a cure for these debilitating conditions.

2. Action on out-of-pocket healthcare costs - reform safety nets, and provide timely relief from fees when it is needed most

Too many people are struggling with the costs of care and face the awful dilemma of choosing between buying basics like food or being able to afford their healthcare. We are calling for reforms including Introducing a single, automated Health Safety Net covering both the Pharmaceutical Benefits Scheme and Medicare, changing the expenditure qualifying periods to a 12- month rolling period to ensure people get equitable access to concessions, and provide additional fee relief during arthritis flares when healthcare costs skyrocket.

3. Fund affordable and accessible care for people with arthritis and musculoskeletal conditions, including exercise and rehabilitation through allied health and social prescribing programs

Too many people are forced to put up with the pain with little care or support, languishing on elective surgical waiting lists that can exceed 500 days. Allied health services such as those provided by physiotherapists and dieticians are critical but simply unaffordable for many people.

From now until the Federal election, we your help to lobby federal parliamentarians to take action on arthritis and MSK conditions.

What can you do?

Inform

Inform yourself about the impact arthritis and musculoskeletal conditions have on 7 million Australians by downloading our election platform.

Act

Use our tool to email your local Member of Parliament and Senators, share your story and ask for their support.

 

Share

Share this campaign with your family and friends for even more impact. Remember to tag us on Facebook, LinkedIn, Twitter and Instagram

Together, let’s make our voices heard this election.

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World Arthritis Day | 2024 https://arthritisaustralia.com.au/world-arthritis-day-2024/ Tue, 01 Oct 2024 23:41:21 +0000 https://arthritisaustralia.com.au/?p=16894 World Arthritis Day 2024: Empowering Through Information October 12th marks World Arthritis Day, a global initiative to recognise the challenges faced by millions living with arthritis and musculoskeletal conditions. This year’s theme, “Informed Choices, Better Outcomes,” highlights the critical role of evidence-based information in empowering individuals to manage their health effectively. Click here to download...

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World Arthritis Day 2024: Empowering Through Information

October 12th marks World Arthritis Day, a global initiative to recognise the challenges faced by millions living with arthritis and musculoskeletal conditions. This year’s theme, “Informed Choices, Better Outcomes,” highlights the critical role of evidence-based information in empowering individuals to manage their health effectively.

Navigating the Information Age

In our digital era, access to information is abundant, but not always reliable. While knowledge can be empowering, the sheer volume of data—coupled with potential misinformation—can overwhelm those seeking guidance. This year’s focus aims to cut through the noise, emphasising the importance of evidence-based resources in making informed health decisions.

The Impact of Arthritis in Australia
Australians with arthritis will increase from 4.11 million in 2025 to 5.39 million in 2040, across all ages. This staggering projected increase underscores the urgent need for accessible, accurate information to support those affected.

2024-fast-facts

How You Can Make a Difference

Raise Awareness: Help educate fellow Australians about the impact of arthritis and the importance of reliable information. Share your experiences using on social media and tag us @arthritisaustralia or download the social media assets in our toolkit to raise awareness.

Donate: Your contributions fund crucial research, resource development, and advocacy efforts. By supporting Arthritis Australia, you’re helping to uncover new treatments, create educational materials, and push for better healthcare policies.

The Power of Informed Choices

Access to accurate information is more than just a convenience—it’s a pathway to better health outcomes and improved quality of life for those living with arthritis and musculoskeletal conditions. By making informed decisions, individuals can take control of their health, leading to more effective management of their conditions.

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Over 20 peak groups join Arthritis Australia’s call for urgent action on arthritis and musculoskeletal conditions. https://arthritisaustralia.com.au/summit2024-communique/ Fri, 06 Sep 2024 06:31:42 +0000 https://arthritisaustralia.com.au/?p=16556 Arthritis Australia and over 40 leading health stakeholders including over 20 peak bodies have issued a formal communique calling for urgent action to provide more affordable evidence based care, following the first national parliamentary summit on arthritis and musculoskeletal conditions, which recently brought together over 90 consumers, clinicians, researchers, policymakers and industry representatives.  “Implementing proven...

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Arthritis Australia and over 40 leading health stakeholders including over 20 peak bodies have issued a formal communique calling for urgent action to provide more affordable evidence based care, following the first national parliamentary summit on arthritis and musculoskeletal conditions, which recently brought together over 90 consumers, clinicians, researchers, policymakers and industry representatives. 

“Implementing proven models of care, including allied health support for exercise and symptom management to support people on joint replacement waiting lists, will make an immediate difference to their quality of life. And we know that a large proportion will fi nd their osteoarthritis so improved that they choose not to proceed with costly surgery, resulting in quickly realised savings to the health budget bottom line,” said Arthritis Australia Acting CEO Louise Hardy.

“Investing in early, evidence-based care for osteoarthritic conditions is essential to reducing the incidence of orthopaedic surgery in Australia. With over $2 billion spent annually on healthcare costs directly related to osteoarthritis, including knee and hip replacement surgery, there is an urgent need to prioritise funding for preventative measures that can delay or even prevent these surgeries. By doing so, we can improve patient outcomes and reduce the financial strain on our healthcare system,” states Dr Michael Johnson, President of the Australian Orthopaedic Association, the peak professional organisation for orthopaedic surgeons in Australia.

The communique calls for action in five key areas to address arthritis and other musculoskeletal conditions such as back pain, including calling for:

  • Funding and enabling delivery of cost-effective, coordinated lifestyle behavioural models of care for arthritis and other musculoskeletal conditions, with equitable access for rural and regional and priority populations
  • More affordable access to allied healthcare for Australians who need it
  • Support for consumer education and health system navigation
  • Supporting and enabling the multidisciplinary workforce to provide better care, including addressing workforce shortages
  • Funding an arthritis and musculoskeletal research Mission that is commensurate with the disease burden and economic impact of these conditions

The full communique and list of signatories can be accessed below.

About Arthritis Australia
Arthritis Australia is the peak national body for arthritis, advocating on behalf of almost 4 million Australians living with arthritis, and working with many other arthritis organisations to deliver information and support to people living with more than 100 types of arthritis and musculoskeletal conditions.
We are a leading non-government funder of arthritis research in Australia and advocate for policies, programs and funding initiatives that will improve the health and wellbeing of people living with arthritis.

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Arthritis Australia’s first interactive Parliamentary Summit on Better Care for Arthritis and Musculoskeletal Conditions https://arthritisaustralia.com.au/summit-2024/ Tue, 27 Aug 2024 05:59:54 +0000 https://arthritisaustralia.com.au/?p=16286 Arthritis Australia’s first interactive Parliamentary Summit on Better Care for Arthritis and Musculoskeletal Conditions on 22 August was attended by over 90 consumers, clinicians, researchers, industry, peak groups, parliamentarians and policymakers who gathered to address the pressing challenge of arthritis and musculoskeletal conditions. With escalating health system and out of pocket costs, it’s crucial that...

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Arthritis Australia’s first interactive Parliamentary Summit on Better Care for Arthritis and Musculoskeletal Conditions on 22 August was attended by over 90 consumers, clinicians, researchers, industry, peak groups, parliamentarians and policymakers who gathered to address the pressing challenge of arthritis and musculoskeletal conditions.

With escalating health system and out of pocket costs, it’s crucial that we fund and incentivise the cost-effective care that we know works.

The summit highlighted the urgent need for action to transform healthcare for the 7+ million Australians living with arthritis and musculoskeletal conditions. Expert and lived experience presentations provided in-depth insights into the importance of investing in these conditions to help individuals live healthier lives while also producing significant savings for the health system.

We were honoured to have the Hon Assistant Minister Ged Kearney, the Hon Senator Anne Ruston, and Senator Louise Pratt speak to the key issues affecting the 7+ million Australians living with arthritis and musculoskeletal conditions. Facilitated by Karen Middleton, our panel of experts and lived experience speakers, including Prof David Hunter, Prof Rachelle Buchbinder, Ms Jo Root, and Associate Professor Jane Desborough, provided key insights into what can be done to help people live healthier, more fulfilling lives while also producing significant savings for the health system.

We also received significant radio media coverage including from ABC and 2GB.
Click here to read our media release.

The summit focused on four key areas of consideration:

Workforce: Effectively utilising, supporting and enabling health professionals in both public and private sectors, including addressing shortages, new funding models and upskilling.

Innovative Models of Care: funding cost effective models of care that improve patient quality of life, reduce surgical waiting lists, and save the health system money.

Addressing Out-of-Pocket Costs: Developing strategies to alleviate the substantial financial burden on patients, including affordable access to allied health care.

Research Investment: Advocating for a Medical Research Future Fund Mission to accelerate arthritis and musculoskeletal research, aiming to reduce use of ineffective treatments and replace them with better care options.

With arthritis and musculoskeletal conditions affecting one in three Australians and costing the health system nearly $15 billion annually, it’s time to prioritise evidence-based care and research. 

We encourage you to stay engaged and informed as we work towards these critical reforms.

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ARTHRITIS AT BREAKING POINT: Greater access to physios, dietitians, and other allied health essential to stem staggering rise in hip and knee replacements https://arthritisaustralia.com.au/parliamentary-summit-on-better-care-for-arthritis-and-musculoskeletal-conditions-2/ Fri, 23 Aug 2024 06:21:32 +0000 https://arthritisaustralia.com.au/?p=16213 Arthritis Australia is calling for urgent, affordable access to lifestyle behavioural care from physiotherapists, dietitians, and other multidisciplinary allied health, to help address the escalating crisis in arthritis and musculoskeletal conditions now placing unprecedented strain on communities, hospitals and health budgets. The Australian Government’s Commission on Safety and Quality in Healthcare last week set a...

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Arthritis Australia is calling for urgent, affordable access to lifestyle behavioural care from physiotherapists, dietitians, and other multidisciplinary allied health, to help address the escalating crisis in arthritis and musculoskeletal conditions now placing unprecedented strain on communities, hospitals and health budgets.

The Australian Government’s Commission on Safety and Quality in Healthcare last week set a revised Clinical Care Standard for osteoarthritis of the knee, affirming that most patients can improve pain and mobility without costly joint replacement surgery, when they have access to best practice non-surgical care. But such care is currently not well funded or accessible.

“There’s a significant gap between the Care Standard and what is accessible to people with osteoarthritis under current funding models. Consumers lack affordable access to necessary care and are left with few alternatives to surgery. Hands-on support from allied health professionals for pain management, physical activity, and weight loss is crucial to control the rising number of surgeries,” states Jonathan Smithers, CEO of Arthritis Australia.  

“If properly funded it will alleviate pressure on the hospital system and most importantly improve people’s health, quality of life and keep many in the workforce and actively contributing,” he adds.

Research shows education, exercise therapy and support for weight loss and pain management from physiotherapists, dietitians and other allied healthcare professionals, as recommended within clinical guidelines, could reduce high-cost hip and knee replacements for osteoarthritis by a third, saving $1.01 billion a year by 2029 if proven models of care are rolled out nationally.1

Hip and knee replacements for osteoarthritis have reached a record high, averaging over 370 procedures per day and projected to more than double by 2030 to an unsustainable over 650 daily surgeries. 2,3,4

Private hospitals manage over 70% of these procedures, with osteoarthritis responsible for 11% ($2.6 billion) of private hospital expenditure.5 In the public system painful waiting lists exist – the median waiting time for a knee replacement in 2022-23 was over 300 days from referral to surgery.6

Largely ignored and sitting ‘under the health radar’, arthritis and musculoskeletal conditions, including low back pain, affect one in three Australians and are our highest cost disease group at $15 billion a year.7 The annual direct healthcare expenditure of osteoarthritis and rheumatoid arthritis alone exceeds $5.26 billion, sitting well above the $3.4 billion spent on diabetes and $2.5 billion on coronary heart disease.5,8

Cost of living pressures are also impacting access to allied health support for those living with arthritis and related conditions. New insights from Arthritis Australia and Australian National University’s Associate Professor Jane Desborough, gathered from a survey of 760 people living with arthritis and musculoskeletal conditions has found:9

  • Nearly half (44%) spend over $100 a month out of pocket on allied healthcare, for which there is currently limited government funded access
  • Almost half (48%) surveyed report cutting back on allied healthcare spending this year due to cost-of-living pressures
  • 43% report that reducing their spending on healthcare has resulted in increased pain and other symptoms, with 39% also reporting mental health impacts

“Over half of Australians living with osteoarthritis are not receiving care according to clinical guidelines. Our healthcare system incentivises high-cost, late-stage procedures, while failing to fund earlier lifestyle behavioural interventions. By providing better clinical care at an earlier stage, we can help individuals manage their arthritis more effectively and avoid or delay invasive surgeries to alleviate pain,” adds Professor David Hunter, Florance and Cope Chair of Rheumatology, consultant rheumatologist at Royal North Shore Hospital and leading authority on osteoarthritis.

“Arthritis and musculoskeletal conditions such as osteoarthritis and back pain have been overlooked for too long, both in funding evidence-based care and crucial research to reduce use of ineffective treatments and replace them with better care options,” said Professor Rachelle Buchbinder, Head of the Musculoskeletal Health and Wiser Health Care Units in the School of Public Health and Preventive Medicine at Monash University and Chair of the Australia & New Zealand Musculoskeletal (ANZMUSC) Clinical Trials Network.

Arthritis Australia is holding a Summit in Parliament House on Thursday, 22nd August, to place an urgent spotlight on the issues facing those living with arthritis and musculoskeletal conditions, the health and hospital system and the challenges facing governments. Almost 90 consumers and health system leaders and experts from around Australia will examine the significant current challenges and build a comprehensive path forward focussed on high value care, equity of access and reducing the health and economic burden. 

Four areas will be considered:

Workforce: Utilising allied health professionals effectively in both public and private sectors, including new funding models and upskilling measures.

Innovative Models of Care: Funding models of care in accordance with clinically recommended guidelines to improve patients’ quality of life, shorten surgical waiting lists and save the health system money.

Out-of-Pocket Costs: Strategies to reduce the substantial expenses imposed on patients, including affordable access to allied health care.

Research: Funding a Medical Research Future Fund Mission to turbo charge arthritis and musculoskeletal research to develop higher quality treatments and interventions.


About Arthritis Australia

Arthritis Australia is the peak national body for arthritis, advocating on behalf of over 4 million Australians living with arthritis, and working with many other arthritis organisations to deliver information and support to people living with more than 100 types of arthritis and musculoskeletal conditions. We are a leading non-government funder of arthritis research in Australia and advocate for policies, programs and funding initiatives that will improve the health and wellbeing of people living with arthritis. For more information visit: arthritisaustralia.com.au

Issued by Cube on behalf of Arthritis Australia. For more information, please contact: Anne-Marie Sparrow on 0417 421 560 or Kayla Behayi on 0403 425 572. 

References:
1. Ackerman IN, Skou ST, Roos EM, Barton CJ, Kemp JL, Crossley KM, Liew D, Ademi Z. Implementing a national first-line management program for moderate-severe knee osteoarthritis in Australia: A budget impact analysis focusing on knee replacement avoidance. Osteoarthr Cartil Open. 2020 May 6;2(3):100070. doi: 10.1016/j.ocarto.2020.100070. PMID: 36474677; PMCID: PMC9718332
2. Ackerman I et. al., (2019). The projected burden of primary total knee and hip replacement for osteoarthritis in Australia to the year 2030. Accessed 13 August 2024
3. Australian Orthopaedic Association National Joint Replacement Registry, Procedures Reported (hip and knee). Accessed at https://aoanjrr.sahmri.com/procedures-reported.
4. Ackerman, I.N., Bohensky, M.A., Zomer, E. et al.The projected burden of primary total knee and hip replacement for osteoarthritis in Australia to the year 2030. BMC Musculoskelet Disord 20, 90 (2019). https://doi.org/10.1186/s12891-019-2411-9
5. Australian Institute of Health and Welfare, ‘Heart, stroke and vascular disease: Australian facts’, Dec 2023. Accessed Feb 2024.
6. Australian Institute of Health and Welfare, ‘Elective Surgery’, Dec 2023. Accessed Aug 2024.
7. Australian Institute of Health and Welfare (2023) Health system spending on disease and injury in Australia, 2020-21, AIHW, Australian Government, accessed 25 January 2024.
8. Australian Institute of Health and Welfare, ‘Diabetes: Australian facts’, Dec 2023. Accessed Feb 2024.
9. Unpublished survey, August 2024.

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Parliamentary summit on better care for arthritis and musculoskeletal conditions https://arthritisaustralia.com.au/parliamentary-summit-on-better-care-for-arthritis-and-musculoskeletal-conditions/ Thu, 08 Aug 2024 00:13:03 +0000 https://arthritisaustralia.com.au/?p=16146 Click here to download the summit agenda Click here to download the communique Musculoskeletal conditions, including arthritis and back pain , affect around 7 million people or 1 in 3 Australians, and are a leading cause of chronic pain. As our most expensive disease group, they cost the health system almost $15 billion dollars a...

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Musculoskeletal conditions, including arthritis and back pain , affect around 7 million people or 1 in 3 Australians, and are a leading cause of chronic pain.

As our most expensive disease group, they cost the health system almost $15 billion dollars a year. People living with these conditions have to spend thousands of dollars in out of pocket healthcare expenses. There is evidence that some of this money is spent on the wrong – and in some cases harmful – care. Australia is not getting the best return on its financial investment, including its investment in research. Even more importantly, millions of Australians are missing out on the care and treatment that will support them to contribute as workers, carers and members of the community.

This is our first interactive summit is aimed at driving practical reforms to provide better, earlier care for chronic musculoskeletal conditions that is affordable and accessible to all Australians, and to support greater investment in impactful research.

All statistics courtesy: Ackerman IN, Gorelik A, Berkovic D, Buchbinder, R. The future burden of arthritis in Australia: Projections to the year 2040. Sydney: Arthritis Australia; 2024

The summit will feature:

Minister for Health and Aged Care, the Honourable Mark Butler MP
Shadow Health Minister Senator the Honourable Anne Ruston
Parliamentary Friends of Arthritis co-chairs Senator Louise Pratt and Dr Anne Webster
Consumer and Arthritis Australia Chair Kaylene Hubbard
Professor David Hunter, the world’s leading expert on osteoarthritis
Professor Rachelle Buchbinder, leading international researcher and proponent of evidence based medicine
Ms Jo Root, consumer and Director of Policy and Research for Consumers Health Forum of Australia
A/Professor Jane Desborough on out of pocket healthcare costs

Practical solutions that better the lives of people living with arthritis and musculoskeletal conditions

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Equitable access to effective multidisciplinary care
Exploring evidence based models of care and funding models to provide equitable access to care that delivers better value for our health budget

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Addressing out of pocket costs
Understanding the true impact of out of pocket costs for people living with arthritis and musculoskeletal conditions and developing policy solutions

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Key enablers to better care, from research to workforce
By bringing together consumers, clinicians, researchers, policymakers and some of Australia’s leading experts, we aim to develop practical proposals to move the dial for people living with arthritis and musculoskeletal conditions.

GET IN TOUCH

Support: info@arthritisaustralia.com.au
Media & PR: lhardy@arthritisaustralia.com.au

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